Sunday, May 2, 2010

Out of the ICU!

We've been moved out of the ICU to a private room - Giraffe 3025. We are still unable to use cell phones here, but have wireless access as before.

I jinxed myself by writing about how uncomfortable the recliner was in yesterday's post. Summer had a rough night and didn't want to be put down in her crib at all, so we spent the entire night in that recliner. Definitely didn't get much sleep at all.

She's continued to be pretty uncomfortable today, now that all the anesthesia and morphine have completely worked their way out of her system. We'd been trying to keep her comfortable with Tylenol, since that worked yesterday, but it has not been enough today and we've been giving her oxycodone too. When that's working for her, she is a pretty happy kid.

We loved our ICU nurses, but we're happy to be in a private room without Summer having to be tested nearly as often before. Now we can also use the bathroom and shower in our own room, rather than having to go out to the waiting room for the bathroom or upstairs for the shower. Both of us can now stay in the room overnight, so hopefully I'll be able to get more sleep with Jason here to help out. We can also have more than one or two visitors at a time, and can eat meals in our room. Little things, but they'll make the next few days easier.

Summer will probably have a CT scan tomorrow to check that she's reabsorbing the spinal fluid released when they opened the cyst. If she's not doing it on her own, they'll release the fluid with a valve. Not much else to report just yet. Still planning to meet with the ophthalmologist in the next few days and hear back from the tumor board Wednesday night or Thursday.


  1. Yay! Good news! It was fun seeing Summer today! Your new room sure is nice, and it seems like it is going to make things easier on you guys! See you again soon!

  2. So glad to hear that things are going so great! Will continue to pray for a good outcome with the meetings this week!

  3. I'm glad to hear that you are out of the ICU and have a few more things that will make it a little more comfortable for you. I hope Summer has a better night tonight and that you get some much needed sleep. I'll be coming by in the next day or so to visit.